Thought I'd start from the beginning of our journey swimming with Emma for my 1st of many blog topics. On February 14, 2011 Emma was diagnosed with Celiac Disease. Celiac Disease is a serious genetic autoimmune disorder. When a person with Celiac ingests gluten (protein found in wheat, rye, barley...and some oats) the gluten attacks and destroys their small intestine. So no, unfortunately for Emma a gf diet is not a fad or a trendy diet or lifestyle...it's a necessity. Many people choose a gf diet for many health reasons, not just those who have been Celiac diagnosed with confirmation of blood test, scope, and biopsy of small intestine. It's proven very beneficial to help with everything from gluten intolerance, Autism, ADD/ADHD, depression, to acne.
So if you or your child has been diagnosed with Celiac, or your doctor told you to eliminate gluten...now what?!? As overwhelming as it may seem right now, I promise it gets easier. But for today, cry...scream...whine...and morn the loss of gluten in your life. Then put on your big girl panties because you have a lot of work to do. Obviously it would take me forever to blog everything I've learned. Part 1 of this blog with be some helpful tips and resources for getting started. Part 2 will be some of our favorite foods, gf brands, and restaurants. Please feel free to contact me with any questions. Click on the Contact Link above.
Why a jellyfish? My daughter Emma has been finding her inner jellyfish for several years. She uses this analogy to explain her life's journey and gains strength from its inner meaning to her. Basically Emma explains that a jellyfish is an amazing creature. Beautiful and graceful on the outside a jellyfish appears to swim through life without a care in the world. Although, when a jellyfish is threatened in anyway it has an amazing ability to adapt and inner strength to protect itself.
Check back often for updates on Emma, special blog posts, and soon to be launched store. :)
Welcome to my daughter Emma's medical journey blog. Read updates on Emma and helpful tips for researching and coping with a child with an unspecified, rare genetic disease living in chronic pain. Click on the ABOUT tab to see how her journey started.