A friend posted the link to this video on our Journey of a Jellyfish Facebook page. It was hard for me to watch at first. I guess it's a harsh reality of my life the past few years as well as the lives of so many...too many... other special moms I know. In honor of Mother's Day I want to shout out to all the moms and mother figures... But this year I want to recognize my fellow moms with chronic and terminally ill kids. To those who had to master "fake bravery". Those who have spent too many days crying in the shower. Those who scream alone in the car or into your bedroom pillow. Those who break down in a hospital or doctors office hallway so your child doesn't see you... Then suck it up, wipe your tears, and pull inner strength that can only be explained as divine. You are the pure example of a mother's love, strength, and courage. You are amazing. You are not alone. Happy Mother's Day Heidi
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Emma's JourneyWelcome to my daughter Emma's medical journey blog. Read updates on Emma and helpful tips for researching and coping with a child with an unspecified, rare genetic disease living in chronic pain. Click on the ABOUT tab to see how her journey started. Archives
December 2017
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